I have started writing to The Little Family during the last month but I cannot end the post. Feelings are too raw and I am overtired.
Elder Girl had to be dashed to hospital after a fit where she convulsed and badly hurt her head and scalp. She had a scan, a electro-encephalogram, various tests, was examined by various doctors and a neurologist, and diagnosed epileptic, which is often the case when DownS persons are ageing and heading towards the end of their lives.
I shall not write about life at home. I shall do this another time. Later. Life is difficult, bleak. I do not know how to cope. I do not have the means to cope and help is distilled drop after drop when I shriek for it.
I am tired of advice from people who do not know what I am going through and what about what The Girls are going through. Fortunately, I have a few kind friends on Facebook who have helped me through last week ordeal. Others are living in their own intellectual private sphere without a shred of understanding.
If you read this, would you please be kind enough to wave, say hello, show that you are here. No more. I feel alone and lonely. I try to be brave but I am NOT brave at all. I am frightened.