This is a long entry with no illustration. Please, bear with it and read it till the end. It is important for Anne-Fleur, for me, for us. This is taken from my blog:
No poppy today although this entry is once again related to the garden. Somewhat. Well. I shall try to make the issues clear, including the garden. If you understand, then, there is a chance the French administration may understand as well. And so, I shall use this entry as a basis for my correspondence with said administration.
Until her sixteenth year, Anne-Fleur was a minor dependent of her parents. When she was twelve, her father died and her mother received the full parental powers over her until her majority. Therefore, when she turned sixteen, Anne-Fleur was declared “incapable majeure” (incapable adult) and placed under the guardianship of the State. But the guardianship was delegated to her mother who remained de facto et de jure her guardian. She had all powers and duties of a parent plus one: all financial matter concerning Anne-Fleur should be endorsed by the Court in Périgueux.
Anne-Fleur was declared incapable adult after psychiatric and medical evaluation. One knows that Down Syndrome is having a third chromosome added to the twenty-first pair and that this chromosome never disappears. Anyway, the French laws, rules, and regulations ask that this evaluation, medical and psychiatric, to determine that one person is still suffering from Down Syndrome, happen regularly every seven years. Don’t ask me why. Anne-Fleur was born with Down Syndrome. She lives with Down Syndrome. She will die with Down Syndrome. But she must pass through the evaluation every seven years.
Each time she has been declared or confirmed incapable adult, she must go through another commission that is at the level of the State and the département. This board and another medical doctor determine the degree of her incapacity. The more she is incapable and the less she has revenues, the more she will “benefit” from a monthly allowance. This allowance has been determined nowadays at the amount of 782€.
While Anne-Fleur was living with her mother, nothing from the allowance was spent. Her mother paid everything. It is very difficult to calculate how much each person living in the same house spends on electricity, telephone, television, food, etc. Usually these expenditures are made communally. Therefore her mother estimated that xx€ were spent on food, xx€ were spent on electricity, etc. And accounts were produced to the Court that had nothing to do with the everyday real life because the everyday real life does not fit in administrative boxes.
When Anne-Fleur’s mother felt she was ageing, she asked the Court to give the effective guardianship to her elder daughter, Anne-Fleur’s sister. Papers were endorsed, signed, duly registered, and Françoise became her sister’s guardian. Nothing changed at the financial level.
When Francoise died, Anne-Fleur was now living with me. We went through the whole obstacle course of the medical and psychiatric evaluation. She was declared incapable adult once more but with high capacities. I was declared competent to take care of her but for the finances. More papers. Hearing of Anne-Fleur by the Court who asked her to sign a paper by which she recognised she was incapable (N.B. How can an incapable person validly recognise that she is incapable?) and that she accepted an appointed administrative guardian. Anne-Fleur did not understand a word of what was happening and told the Court it was stupid to spend a whole sheet of paper for three lines at the top: half a sheet would have been more reasonable.
Then, we went through the second obstacle course: that of the allowance. It was given: 782€ per month. The guardian decided that even as we had no other resources, Anne-Fleur would be allowed 220€ per fortnight. This is our sole “revenue”.
But…But Anne-Fleur being handicapped could “benefit” from hours to help her “socialise” with a lady who would take her out for “socialisation” (the notion is kept vague but may cover taking her for a walk, going to the library, going to see a film, etc.). Anne-Fleur has got three hours of socialisation per week.
I asked about the use of the “socialisation” hours for cleaning and gardening. But strictly speaking, this is impossible because these hours must be devoted to Anne-Fleur exclusively.
However, if the cleaning, cooking, housekeeping, gardening (I mean keeping the environments of the house with cut grass, no more) are not done, the environment can be declared insalubrious and Anne-Fleur taken away from home.
And, letting alone the day-to-day life with 220€ per fortnight, here come the issues.
I drive. Fortunately, because we live in the countryside and we are two kilomètres away from the supermarket. The exhaust pipe is stalled and I cannot drive with it bumping under the car. I have signalled the fact to the financial administrator and asked for it to be mended. No answer. No use of the car. This happened six months ago. Six months of silence. The battery of the car is now discharged. More cost. Still silence.
As we need to eat and we need some other small things to live, the “socialisation” lady has become “the shopping lady”. She drives Anne-Fleur and my shopping list supposedly during one hour on Tuesdays and two hours on Fridays (in fact, it is always less for evident reasons as she has to drive from house to house where she works and that takes a quarter of hour away from an hour) to the supermarket. When she is here. When she is not – at least once or twice per month – there is nobody and no way to make our shopping.
When I talked about a great spring house cleaning, there was a wholehearted yes by all instances.
Now comes the question: who is going to clean and who will pay?
As there has been three months that this issue is being discussed, I am beginning to tell the shopping lady that she will have to demean herself to cleaning lady and help me. She does not like this at all and finds excuses not to do it.
The most evident is that without her shopping, we shall not survive. And you remember that we cannot go shopping by ourselves because the car has been needing mending for six months.
So, we have: no money, no mending of the car, no shopping by ourselves, no help for cleaning.
As to cutting grass, there has been a clear “no” to it. We dare not open the french windows anymore and the paths and alleys are full of grass that goes knee high,but hours for cutting the grass would not be exclusively devoted to Anne-Fleur.
This is our daily life.
If you have come until then and understood that the French administration is full of paradoxes, please, click “I like” or, better, leave a comment. And I shall try once more to explain my issues of car, shopping, house and garden to said administration.